Truth time. I *should* be full of joy. I have so many reasons to be. Truly. More reasons than usual actually. And yet, I’m feeling a wee bit flat. I was rocking and rolling until last Thursday morning when the wind got knocked out of me, metaphorically speaking. Since then, it’s been a battle to re-energize myself for long periods of time. The good moments come, I laugh, I smile, I feel the joy and then I go flat again.
Actually, if I’m going to be honest, ever since Thanksgiving it’s been a battle. The holiday season can be tough, especially as a single mom. I try to pretend it isn’t. I try to pretend that all the magic of the season makes it okay, but the truth is, it can be tough.
But the last week has made it extra tough and I’m feeling blech galore. (AND there is an uplifting morale of the post here, have no fear.) I got my 48 hour seizure test results back Wednesday night. As expected, I’m not having seizures. No surprise. What wasn’t expected?
Well, that I would have to fight to get a disc of the video recordings from the test. You see, I’ve been trying for years, at least four, probably five, to capture my symptoms on video so that I can get an actual diagnosis and thus actual help. It’s been like catching a leprechaun. Impossible! Out of the blue, all of a sudden, my body spasms. Big time. Arms, legs, neck.
And it hurts. Like whiplash level hurts. This recent test actually caught five episodes. FIVE. And the office is fighting to give me, ME, the person in the videos, access to the data. Don’t get me started.
I’m exhausted.
I’ve been fighting for years.
I’ve been fighting to be seen as an individual.
I’ve been fighting to be heard, really heard.
I’ve been fighting to be taken seriously, to not be judged as just having anxiety.
I’ve been fighting to be believed.
I’ve been fighting to be helped.
I’m this close and yet a new battle has arisen. One that shouldn’t exist. Did I mention I’m exhausted? I just want to quit the fight and accept that I will have to deal with these symptoms. I feel so defeated. And angry. And did I mention, tired? And yet, and yet, I won’t stop. I won’t quit.
When I got the call back Thursday that “they weren’t able to make the disc” because bs reason, bs reason, bs reason, I didn’t call back. It would have been the third call that day. I just didn’t have it in me. I didn’t have it in me to stay patient. To stay kind. To stay rational. And so, I’m resting. I’m rebuilding my reservoir of kindness and patience.
When I call back, I want to have a productive phone call. I want to be able to have a good chance of getting people to want to work with me, instead of not wanting to help me at all. I’m still not rested enough, or removed enough from my absolute frustration.
And it doesn’t help that this holiday can be lonely and exhausting. The feelings of the season match the health situation. I want to quit a lot there too 🙂 My kids didn’t want to help with the tree to the extent they usually do so I wanted to say forgettabout it.
But I didn’t. I just waited until they were ready. I’m creating a lot of my own holiday energy and magic and it’s hard. It makes me want to say I quit this season and yet… I won’t stop trying to create joy. I won’t quit the holiday. I won’t give up on what matters to me. But I will allow myself to feel what I’m feeling so I can help it pass through my system.
So I can shake it out – spasm it out as my body likes to do, hurt it all;) So that I can find my way back to more joyful feelings. (Well at least for longer period of time!!!) What about you? How are you doing this time of year that can be demanding, exhausting and tough for oh so many reasons?!
Sending my warmth to go with your strength, today and always, and especially if you too are fighting something, anything, and are finding it hard to keep the energy going.
xoxo, Sheila
🧡 The Orange Rhino
